Moving on...

There will be a new stage of treatment for Ron after May. He will have two more extracorporeal Photopheresis, ECP, treatments in early June, and this treatment will end. So Ron will have his central line removed. He will have had a Neostar almost 4 years of the almost 5 years since his transplant. He has had a neostar during his ECP regimen the past 3.4 years. 137 treatments after June's. Hopefully, his chronic GVHD symptoms will not return. What a mixture of excitement and nervousness I am feeling about this change.
Ron's new bone marrow is producing blood cells in or nearly in the normal range. The only significant deficiency is in his immunity products, so he will continue to have immunity infusions. He is progressing to having those infusions 2 months apart. (From monthly infusions for a looong time) There are really no improvements in his cognitive and physical changes. Ron continues to do odd things like tear napkins up into small sections, label everything, use highlighters and white out excessively, and shave off his eyebrows, etc.....all harmless. He uses a cane some if I am holding his other arm, walks slowly with his walker, and we use his wheelchair if it is a situation that requires some distance to cover. I do feel like we are in a stable routine.
The wound center here in Bowling Green is seeing Ron to help us get his leg wound healed from his fall out of bed in March. They are so thorough and professional...very impressed! Somehow he broke the brake handle off his walker when he fell out of bed during a bad dream. That is probably how he gouged his leg.
We plan to spend more time at the lake house over the warm months. So lucky to have two homes that we love and enjoy!