Grind... Another Day in Ann Arbor: 11 Months After Transplant

We definitely need a "week off" from our Ann Arbor trips. Because today's first appointment was at 9:00 at a new office, we were up early to prepare for the 2 hour travel time. He met with a neurologist for an evaluation. Now this might not seem like good news to you, but he told Ron that it might take 1-2 years more for his body to reach its peak recovery. The assault on his body with leukemia, 7 rounds of toxic chemo, the bone marrow transplant, viral and bacterial infections that required more hospitalizations, steroids and immunosuppressants to combat the acute and now chronic graft versus host disease have serious side effects,especially muscle atrophy and 60 pound weight loss, and with the loss of vision in his left eye...his recovery is slow but still a work in progress. There is no indication of a major neurologically based disease or condition that will cause deterioration of motor skills, so we are hopeful that he will get much better over time. It was such a relief to know that this isn't "as good as it's going to get." He will keep grinding.