Friday, September 5, 2014

Overdue Post

The realization of passing the three year anniversary of the bone marrow transplant and being where we are as far as recovery weighed on me. Throw in Labor Day, Ron's 66th birthday, and plotting out all of the appointments in September brought on a mixed bag of emotions. Labor Day always feels like the end of summer, but I have always loved autumn and the change of seasons.
Ron has been "about the same" all summer; the last crisis was the mid May hospitalization. He had a check up with Dr. Mag and Tim this week. He has been taken off Vantin, one of the three antibiotics that he has taken for months and months. Starting in October he will taper his ECP treatments from every other week to every third week. It feels like a move ahead but scary at the same time. Any flare of GVHD or an infection is a setback that is hard on him. Me too.
We are moving ahead with scheduling routine dental and vision appointments back with our previous doctors in Bowling Green. Paperwork is in process for Ron to have an oncologist here in BG, so he can have his IVIG immunity infusions in the Cancer Care Center here. Next Monday we will go to AA for an IVIG, but hopefully, his October one can be done here. That will be one less day trip to U of M Hospitals.
In addition to the immediate issues mentioned at the beginning of this blog entry, our son, Andrew has been deployed to Baghdad from Kuwait. His surgical team had been sent to Kuwait as a readiness maneuver, and it was unlikely that they would be sent to Iraq. However, due to specific needs there, two of them have been sent to Baghdad. Andrew is an O.R. Nurse, and he was needed to fill that position there. That makes the little black cloud that hovers around me a little larger. I still do enjoy many things, but there is always a heaviness of worry during deployment.
Ron and I are looking forward to a trip up north to see fall colors in mid October, and we are also planning a trip to Virginia in November. Both Matthew's and Niccole's families live in Virginia. Lisa and daughters Abby and Lily continue to live in Germany where Andrew will return from his 9 month deployment. That is about 7 months away. It is wonderful to live about 2 miles from Cale's family; they helped us celebrate Ron's birthday last evening, and we are gearing up to watch the Buckeyes play Saturday together. Good medicine to spend time with grandchildren!

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