Continuing to do well...

After the occupational therapist made her visit, she signed off on us needing any more adaptive equipment, education in safety issues, or care-giving. So Ron will only have a physical therapist during the remainder of our time in the apartment. He is taking responsibility to exercise on non-therapy days, and we walked even further today. I can now see a little muscle definition in his calves and his skin is beginning to tone. His legs were/are so thin. During Ron's last hospitalization, they took him off two more medications, and that seemed to help clear his thinking quite a bit. One was his med that suppresses the conflict between his transplant cells and his own cells. Ron continues to show evidence of graft versus host disease of his skin. There are ointments to treat cGVHD of the skin rather than pills, so that is what is going on now. Some of his skin is reddened like a sunburn, and there is slight rash a couple places. He seems much more like his old self; the words feisty and cranky have even come to mind...much better than docile and lethargic. We are going home for the weekend, returning to AA for appointments everyday of the following week and hope to get the clearance to make our permanent move Memorial Day weekend. Holding our breath, Ron & Jan