Thursday, September 26, 2013

For better for worse...

..in sickness and in health, to love and cherish.. I am thinking of our wedding vows because today is our 43rd wedding anniversary. A little trivia: Ron was almost 17, and I was 18 years old when we had our first date. He was a senior in high school, and I was a sophomore in college, and we worked in the same Indiana Tollroad restaurant. A lot of time and shared life experiences have passed. We have had a blessed life.
Ron thanks me every day for taking care of him, and I remind him that I will always be here to take care of him. We vowed to do so, but it is out of much more than a sense of duty.
I am feeling mushy on our anniversary.
I have been holding off writing this entry until after yesterday's trip to Ann Arbor. I knew that Ron's skin was showing signs of graft versus host disease again, so I knew that some changes in meds would result. It is considered "a flare up", and liver enzymes were elevated more too, so it is involved as well which has been the case in the past flares. His lungs sounded a little crackly, so he had a chest X-ray too. So in the present his prednisone dosage is increased which means he has less immunity, so he has new meds for his lungs and is going to go back on the anti fungal that they stopped in July. I am hopeful that his cognitive changes will remain stable. The doctor's office has called today, and he needs an infusion to boost immunity. We will travel back to AA next week. He is also going to be seen again by the BMT head doc in regard to his chronic GVHD. Everything is a balancing act between controlling his GVHD (the fight between his own body and his new bone marrow-new immune system) and opportunity for infections. That is why he continues to take steroids, 2 antibiotics, antiviral, antifungal, and meds especially for his lungs. The meds for his lungs are similar to COPD regimen.
If he isn't able to tolerate the antifungal, I will give him IVs at home again. This would be the same as we did the first 8 months after the transplant when we lived in our AA apartment. I would use his port; I don't have to do IV pokes. Okay, I was going to keep this concise, and I am rambling. I am having our Edge repaired (computer issues)so am sitting at the dealership. I am rambling.
Ron played some golf with George this morning after rolls and juice with Troxells and Griffiths, and now he is napping. We have plans to go out for an anniversary dinner this evening.
Love to all of you. Thanks for the messages, emails, visits, prayers, positive thoughts, texts, etc. everything helps us cope.
Love, Ron and Jan

5 comments:

  1. So you're the older woman! We are praying that you have many more years to celebrate. Love & hugs, Ann & Bob

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  2. Thinking of you. Sending love and hugs and anniversary wishes and prayers. All our love, Sally & Nancy

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  3. And, no small "by the way": you are both truly an inspiration to us, in courage and love, faith and perseverence. You are beautiful people!

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  4. Brother-in-law George found it very humorous that I didn't just say that Ron was 16...but he was only days away from his 17th birthday!

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  5. Jan, You were the princess bride and now you are the queen of the castle. The King still reigns for sure tho. Happy belated anniversary. Hope your date night was exciting as your first date together. Cheers to many more years as team "Hover."
    All the best to Ron as he deals with some pesky situations.
    Hugs to both. Ginny and Hutch

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