Friday, August 16, 2013

Update after Ann Arbor..

We were in Ann Arbor 3 days this week. Ron has made some improvement with the med change, and I feel like that particular med did aggravate whatever is causing his recovery to stall, but things are not "all better". So the next step is an appointment with his neurologist who Ron last saw in January. Maybe he will be able to provide us with some answers and/or change his medications if necessary.
We also met with the dentist, and she recommended 8 extractions, so we go back to the oral surgeon in September. The amount of decay, its proximity to the bone, and broken teeth are the reason for oral surgery. It is hard to know when/what to put him through. Although the chemo played a part in this, Dr. Mag says the decay is more due to chronic GVHD in his mouth which causes dry mouth.
So we move on, and Ron will taper ECP to once a month in September. That was good news! He is being scheduled to see his BMT doc every 6 weeks as we move past the two year anniversary of the transplant August 24. So hoping that the neurologist can provide direction with addressing the cognitive issues.
Both of us are enjoying the cooler weather, and we were out on the pontoon today. I feel like I have a better handle on taking care of this property. Things seemed a little overwhelming for awhile during the summer. I am cleaning out things and simplifying, and George continues to faithfully mow the yard for us. We have had twin fawns and a doe out by our garden. Sadly, "sad duck" has disappeared from the lake. We had enjoyed him for several years.

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