Light Therapy Begins Again: ECP

This pattern of two days in Ann Arbor a week is going to repeat itself several times. ECP will be two days a week for a few weeks, with a quick trip to Florida to break it up. We don't want to miss Matt's promotion.
The good news and the bad news is that it is winter...so less to do at home, but I am so hopeful that there won't be any more drives like yesterday's!! It was barely snowing at home and very windy, but we drove into a snowstorm, there were several accidents, and at one point traffic was re-routed.
A two hour drive took about 3 1/2 hours. We did arrive safely, but it is COLD!! The wind chill was -17 this morning when we came to the clinic. The high will be near 10 today.
Ron had been in a study for embrel/ECP light therapy August 2011- February 2012. It was to see if this treatment could serve as a preventative measure for graft versus host disease. However, Ron had acute GVHD almost immediately, and it has persisted so now it is called chronic GVHD. The flare-ups have come between periods of time where his symptoms were minimal.
Ron also had a CT scan of his lungs last evening to get a better idea of how GVHD is affecting his lungs. Ron's doctor appointment next week in addition to ECP will give us more information about this bump in the road. He was in good spirits this morning and said that he really felt good.
Prior to coming for his treatments, I rub a numbing cream into the crooks of his arms, really slather more on, and then wrap his arm with Saran wrap. He has IVs in both arms for this treatment, and they do new IVs on the second day too.
So we are hanging in there, and both of us are on board for whatever we need to do.
Love, Ron & Jan